Showing posts with label Treatment. Show all posts
Showing posts with label Treatment. Show all posts

Wednesday, 11 November 2015

Porta-what?

It was only 7.15am and I had already endured a short car ride, walk to the station, an over-ground train, an under-ground train and another walk to UCLH. I can't speak for my Mum, but I was definitely ready for bed and my day had only just begun.

I sat in an unfamiliar reception area, slightly dazed, waiting for my name to be called. "Alexandra Spain, would you like to come through". I was showed to a bed in a children's ward, as being 17 at the time was an awkward age as I was just above the children's age criteria but just below the adults. I changed into some more comfortable pyjama's and attempted to get some more sleep or at least peacefully shut my eyes. I then discovered that this wasn't going to be possible. Children, and I'm talking small babies here, were crying around me. Although I couldn't see them with my eyes, their painful cries made me feel uncomfortable and saddened me to think that such young children were most likely suffering an awful disease when their lives had barely begun. 

"Are you here to have it removed?" The nurse asked me.. I wished. I knew I had a long road ahead of me towards recovery and I would have done anything to fast forward time and be at the point where my portacath could be removed. Unfortunately, I didn't own a time machine. So there I was, patiently waiting to be taken down to theatre for an operation I wasn't even slightly prepared for. Queue the portacath. 

Sunday, 21 June 2015

Battling leukaemia & treatment

This post might not appeal to everyone, but if I can help even just one person that is struggling with the diagnosis of acute lymphoblastic leukaemia (ALL), then it is well worth it.

When I was first diagnosed with ALL, I didn’t know what it was, and I didn’t want to know what it was. Professionals were telling me what was happening to my body, but it was as if my mind did not want to process what I was hearing. I just knew it was cancer, that’s all I needed to know at the time. That I was 17 years old and had just been diagnosed with a form of blood cancer that I only knew the name of from a film, ‘Now is Good’. And if im completely honest, if someone said to me what is leukaemia? I could probably only give you a brief answer.